And then our world fell apart

Originally posted on Chasing dragonflies:
It is exactly a year ago today that Abi came downstairs looking pale and complained she felt really ill. Exactly a year since our world was turned upside down and inside out. I never really imagined what this day would be like, despite people telling me ‘all the anniversaries will…

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The final prognosis

On the morning of Saturday, 9th February, we were allowed into PICU while the doctors did their formal assessment of Abi’s condition. We knew these were ‘last chance’ tests. Abi had been in a coma for over 48 hours. She’d shown very little response since her collapse other than coughing a couple of times and […]

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A knot of hair

Abi was transferred into Bristol Children’s Hospital the afternoon of Friday, 8th February. We were introduced to another consultant, who told us that they were going to ‘start from scratch’ the next day, give her the night to settle in and then assess her entire situation in the morning. We felt bolstered by this. It […]

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Clinging to hope

On the morning of Friday, 8th February, Abi had another CT scan – her first scan after the two operations. Taking her for this scan wasn’t a quick process for the care team; just to move her to the scanning room was a major task as all the equipment had to go with her. We […]

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Intensive care … is intense

Seeing your child in intensive care is a scary prospect, it’s not called ‘intensive’ for nothing! The machines are the first thing that you notice, but you know that every wire and machine is there for a very good reason so they become less daunting after a while. I almost got used to them, even […]

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For instructions on grief, please read this leaflet…

Dear Doctor, You’ve stood with me on this journey You saw my daughter being rushed into your ICU You stabilised her You kept her young body going Gave us hope after hope that she might wake up You showed empathy when that hope was gone

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Hospital waiting rooms (Frenchay)

I wrote this post on 15 March 2013, just a month after Abi died. I needed to document the trauma and stress that I’d had to live, to get it out of my head in some way. I still remember every moment. I will be resharing my story of our terrible time, more for those […]

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Fight or flight… going to A&E

Picking up from my post on CPR (CPR – do you know how?), where I described the distress of Abi’s collapse, I thought I’d try to describe the panic I experienced during Abi’s transition to A&E, and how that changed to a numb acceptance that helped me deal with the hours of waiting that followed. […]

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The reality of performing CPR on my own child

When Abi died, it was very peaceful and controlled. But when she collapsed at home, in our bedroom, we went from calm to extreme panic in a matter of minutes. I was reading to my other daughter, my son was lying in his bed drifting off. My husband was looking after Abi in our bedroom, […]

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Did puberty trigger my daughter’s death?

My middle daughter came home from school yesterday with a pretty box stuffed full of sanitary towels and tampons. They’d had the end-of-year talk about sex and periods. My daughter wasn’t fussed. She’s quite happy to wait to grow up and, while she knows periods will happen at some point, she’s in no hurry and […]

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