The baby nobody mentions

Dates are always important when you’re grieving and even though I try hard not to get on the anniversary train, it’s impossible not to think of ‘this time xx years ago’.

Abi died on 10th February 2013 aged 12 years old. I’ve posted before about the days leading up to us turning off her life support. We have four days of being reminded and also trying not to remember. But, in truth, this period of mourning starts much sooner than this. Of course, I think of Abi every day, but 26th January is a particular day that no one but me secretly remembers.

On that date, we celebrated as Abi finally graded for her black belt in kung-fu, something she loved and had worked hard for over four years.

On that date, I mourned the death of my baby… what would have been our fourth child. Continue reading

Opening up the wound – when the grieving parent withdraws

This time of year can be fraught with emotion and grief for those who have lost loved ones, particularly if that is a child. For those whose birthdays are also this side of Christmas, it can seem like a double grief. Memories of Christmas past, thoughts of Christmas present, and worries for Christmas future. It is hard to find any joy in the season at all.

What I want to write about here is for those of you supporting and loving a bereaved parent at Christmas. You will have seen them though their bleakest times, the aftermath of loss, the pain and heartache as their lives, and very selves, shift and change to accommodate their new grief. It may have already been many years…

While you know that this time of year will be hard, when you see your loved one crumble in grief after a long time since their child died, it can seem somewhat odd. They were – are – OK. They’ve adjusted. Their life is changed but they seem to have recovered.

Now it’s Christmas. Or now it’s their child’s birthday. Or now it’s the anniversary of the day their child died. Maybe it’s all those events at once. And they have become withdrawn, pale, grief-stricken. It’s been so long since you’ve seen them like this. It worries you. You don’t know how to be. You don’t know what to say.

But, I ask you not to fear this pain too much. It’s necessary you see. Grieving mothers and fathers need to open up the scar to let the pain out, a bit like blood-letting of the old days.

On the special days we need to release the pain, the love, the sorrow for that one child, whether they died last month or years ago. We often don’t expect it ourselves, it just happens. It’s our way of connecting with them again. It’s our way of being a ‘parent’ to them again. It’s our way of showing them that even though we have laughed and danced and acted relatively normally, we still miss them to our core.

There’s no real way to reach someone on days like this, and don’t worry that you can’t, they don’t need you to. But, they need your presence. They need that silent love that needs no words. They need the strength of another to carry them through the days until the wound slowly closes over again.

No books, no quotes, no signs of hope are needed right now. Whatever that person needs, they will take. Even if it’s just lying on the sofa staring into space, or sleeping, or watching daytime TV while everyone is out being sociable and ‘family’. And give it to them, with grace and love and no expectations of ‘snapping out of it’ or ‘cheering up’. The parent’s love-pain will soon travel from the wound in the pit of their stomach back up to the heart, and they will return to the present. But, right now, they just need to be with them again.

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Comforting colouring pages

Colouring is an effective meditative and calming activity. Sometimes, when you’re feeling particularly low there is simply nothing you can do. Your mind is fuzzy, you feel confused, deeply sad, and detached from those around you.

Keeping a colouring book handy is a good idea; however, for times when you need something ‘here and now’ I’ve created a set of colouring pages for you to download and print off. Some are simple, others a little more detailed, but nothing is too intricate as, let’s face it, it can be hard to see the lines though weary, tear-filled eyes.

Colour them anyway you like, and take some time to rest your mind. I will add to these pages so keep checking for more, and if there is something you have in mind, send me a message and I’ll see what I can do… Oh and don’t forget to share your finished pieces with me if you want to. Continue reading

Biblical breadcrumbs, books and bereavement

 

On Sunday I attended my church’s All Souls service, which is held to remember those we have loved and lost. I have been to this ever since we lost Abi. The vicar’s sermon focused on this passage. What he said resounded with me so much that I had to replicate it here for you to read.

OK, so Jesus is out and about doing his amazing stuff, healing, miracles, powerful words… and the prophet and Jesus’ relative, John the Baptist, is locked up thanks to bad King Herod. John the Baptist was a special guy. He was sent by God to prepare people for the arrival of Jesus. He was a bit rough and ready, shouting at folk and eating grubs, someone we may all think was a bit of an oddball. Herod was intrigued by him, yet scared of the reaction he was causing so he locked him up. The only problem was Herod’s wife, she hated John and tricked Herod into executing him. Continue reading

Halloween – Trauma or treat?

I no longer buy into the commercialisation of the celebration of evil, horror and fear. Stick a bit of sparkle on a witch’s costume and it makes everything OK, right? It’s only fake.

But I have seen blood pouring from my dying child’s mouth. I have seen the death behind the glassy eyes. I have watched as my child’s skin turned deathly pale. I have watched as her body slowly decayed.

If this makes you feel uncomfortable then perhaps that’s good. For people like me, Halloween brings flashbacks at every turn. When going outside or turning on the TV I realise there’s no escape from it. Cute ghostie cookies to tempt children, family fun spooky events, every shop selling black gorey tat, cartoons being ‘spooktastic’. Then there’s the photos on social media of children I know dressed up to either look like death or like something evil. Great!

That’s not to say I begrudge others participating, I’ve done it myself many times and it’s very hard as my children are so excited about pumpkins and all the ‘fun’ things they see. I am a complete party pooper, I realise that I seem over dramatic. But, while I don’t feel as traumatised now as I did, I know there are many people out there who will be, who have just walked out of a hospital morgue without their child and straight past a shop showing ghosts, ghouls and blood. I can’t bring myself to join in anymore with something that I don’t believe in celebrating.

Our church holds a light party every year which is really popular. I like the idea of focusing on the light in our lives, this world has enough demons already.

 

My teenager is growing up, and I’m the one who’s crying

My second daughter, Abi’s sister, is growing up.

OK, that’s not surprising and I should be thankful, she has now surpassed Abi’s age by three years. Yet, now, aged 15, I see this young woman transformed before me. The same height as me, the same determined look in her eye, the same belief that she is right…

She shouts at me to stop ‘staring’ yet I find myself unconsciously gazing in wonder at her beauty and maturity.

All of a sudden.

I’m told (by text) I don’t need to collect her from school, she’s off to town with her friends. Having spent so long trying to establish friendships with new people who don’t know her history, I know how important this is to her.

Yet I’m sad. I’m unprepared.

Continue reading

Can you help? Life without you – a new resource for grieving parents

I’ve been planning for a long time a way to support grieving parents in the early months of their loss. Those days are like a car crash, where panic sets in, shock and fear overcome every aspect of life and even breathing is difficult.

The resource is a journal called ‘Life without you’, which will guide you through any stage during those first months and years of grief. It is still in the early design stages but is coming together brilliantly and will be available spring 2018! Continue reading

Don’t sweat the small stuff, pray it!

Since Abi died, prayer has become part of my day. I didn’t often pray before, except in church or the occasional Lord’s Prayer. Now, my prayers are more like mini conversations with God. Sometimes, I read a psalm or sing a worship song. Sometimes I read a passage of the Bible aloud, slowly. I rarely have time to sit in silence and pray, as my house is just too busy, so I often find myself in the loo or shower – multitasking my only quiet time to talk with God.

The prayers I have said over the years have also changed. I started by crying out to God, whispering prayers of sorrow, praying for comfort and protection. Gradually, my prayers are ways to say thank you for the blessings in my life, to say sorry for messing up all the time, to ask for help. I then was able to intercede for others outside my immediate network. Praying for the healing of another person you don’t know is surprisingly powerful and shifts the focus away from the self and towards a love for others.

But I’m not a very good pray-er. I say the wrong thing at times, I try to say holy, eloquent words but get jumbled, I lose my train of thought. I wish my prayers had more depth and, I suppose, like my writing were grammatically correct!

I sometimes write my prayers down as that’s easier for me than talking off the cuff. But what to pray for can sometimes leave me stuck.

I recall a scene in the film, Bruce Almighty, where Bruce has died and meets God in heaven. God asks him what he prays for most, Bruce replies ‘world peace’. God smiles and says ‘That’s very good, if you’re trying to win a Miss World contest. What do you really pray for…?’ To which Bruce replies, ‘That Grace [his ex-girlfriend] is happy’.

And that’s a useful way to think about prayer. Of course, I often pray for the big events going on in the world, I also pray the common prayers in church, but what God needs me to do most is to pray into the stuff that matters to me.

A friend, who was in deep grief, met with me and we prayed together. During that prayer we prayed for our lost loved ones and for the people who were missing them, but we also prayed for what some would think ‘small’ things. We prayed that we’d find a way to encourage more volunteers to help at church, we prayed we’d find another supplier of food that we share at our group, we prayed that the sun would shine so that we could take the children to the park…

Simple, small details and insignificant when you compare them to the death of a loved one. But are they?

I reflected on how these small things make up the bigger picture… that if we got one more volunteer then that group can run and many people will benefit… that if we found another local food supplier we can feed them and it will encourage friendship and conversation… that if the sun shines we can get outside and enjoy some fresh air, meet up with friends and find some joy…

All these seemingly tiny details impact another slightly bigger detail.

It’s not been easy, but I’m learning about listening to God, who is guiding me constantly though my day – and asking him to help me take care of the small things in my life so that he is part of my whole life.

 

 

The friends you need through loss

When a friend is grieving, it’s hard to know what to do, how to act, what to say. There’s a lot of criticism for those friends who haven’t ‘been through it’ themselves. These are often the same people who say unhelpful things such as ‘they had a good life’, ‘at least… [insert anything]’, ‘God only takes the best’….

As a bereaved person, you suddenly realise that there are people out there who have been fortunate to live a long time without having to deal with a significant bereavement themselves. Suddenly, those people seem alien to those of us in the ‘grief club’.

However, the non-grieving friend is one of the most important people in the early stages of grief. How can that be when they don’t understand what we are going through?

Well, it’s exactly for this reason that they are so important to us.

When Abi first died, people who had adapted to their own loss offered me support, and as a now bereaved-adjusting mum, I too find myself drawn to support friends who are experiencing loss. Yet there’s something important I’ve noticed about the distinction between those of us who have been there and those of us who haven’t.

When sitting with a friend in their rawness of grief, they are able to open up about the experience, the emotions and pain of loss. But I often hear, ‘it’s not as bad as your experience (losing a child)’. The sense that they can open up and ‘complain’ about their grief is stifled by my own loss. That I had a rawer deal. That they shouldn’t grumble. And that’s simply not true.

By our nature, we compare ourselves to others – our relationships, pregnancies, children’s milestones, jobs, homes, lives… we live by comparison. Grief is no different.

There’s a period following the death of a loved one where the bereaved are in limbo – this is the period that holds the shock, despair, trauma and strain of the loss before the person is ready to join the ‘grief club’.

I am mindful of supporting friends at different stages of their grief.

The initial stage is fuelled by anxiety, anger and fear. No one will understand what the person is going through.

This is where the non-grieving friend can offer the best support.

Rather than stepping back, they should step forward.

Offer to sit and listen, for hours, every day until that story has been told. The bereaved will have a chance to ‘own their grief story’ – to talk about it as though they are the only person to ever have lost someone they loved, to emphasise all the trauma and stress that has impacted them as a result of this loss, to cry and say how much they miss them without fear of affecting the listener’s own grief story. This is their time, and it’s vital to helping them transition into the grief club.

Once in the grief club, they are welcomed by people who’ve been there, who have had loved ones die of the same thing, who are setting examples of how they channel their grief and how they live on without them.

There is a very good place for the people in this club, but initially, as a way to honour the departed and to process what has happened, the grieving need their story to be unique. We all experience loss but every loss is unique and deeply personal.

The death of my daughter, the loss of my pregnancies cannot and should not be compared to the impact of the death of someone in old age or someone who has died from illness. My loss is hard, of course it is, but so is yours.

My advice to the newly bereaved is to seek out friends, experienced or not, who are good listeners, who don’t mind sitting on your sofa for hours passing you tissues, nursing a cold cup of tea (cold tea means they’re listening not bustling around trying to be helpful which would only fog your brain further). Seek out those friends who won’t burden you with their own losses and problems, who say few words, who will smile and lift your spirits a little. It’s your turn to be listened to. And never, ever, apologise for feeling the way you do.

Staying married when you’re mourning

I realise not everyone who reads this is married, or even in a relationship, and we all have unique experiences, but I wanted to give my perspective of marriage after loss, which some may relate to or take comfort from.

One of the first things we heard after Abi had died – quite unbelievably really – is that ‘most marriages fall apart when a child dies’. It’s true, we heard this and read this as we were handed leaflets about getting ‘help’.

So, as well as coming to terms with the huge shock of losing Abi, we then faced the ‘likelihood’ that our once happy life would be forever shattered by her death and no matter how hard we fought it we’d be so broken that we couldn’t stay together. Our lives literally torn apart.

It was, to say the least, a very bleak time.

Yet here we are, four years after Abi’s death having just marked our 18th wedding anniversary.

It’s undeniable that the huge stress of death – and the death of a child – has an impact on a relationship. One day we could be so close we were almost the same person, the next we seemed to be poles apart as we rode out different waves of grief.

Because the loss of a child changes you, it’s inevitable that it changes your relationships too, and the relationship with your spouse or partner is often one of the closest you have apart from the one with your child.

The love we felt for each other hasn’t changed, if anything it’s stronger and we don’t argue about ‘silly’ things anymore (well, not as much). We are quicker to forgive. We move on to finding joy again as quickly as we can.

But that’s not to say we haven’t had a tough time of it. Our marriage is strong, despite the stress, but it’s changed. Your child’s death changes not who you are but your outlook; the things that are important to you shift and grow. You can so easily live on two different parallels though:

One of you is grieving ‘too much’. The other is not grieving ‘enough’.
One of you may want more children. The other doesn’t want another child (and risk more heartache).
One of you may want to move house. The other may need to stay put.
One of you may find it hard to work again. The other may seek solace in being busy.
One of you may want to talk about your child every day. The other may not want to be reminded.
One of you may find faith. The other may lose it.
One of you may fall out with family. The other may be the one who keeps family close.
One of you may take offence at misguided comments. The other may be forgiving of others.
One of you may want to campaign for injustice or charity. The other may want a quiet life.
One of you may crave intimacy and reassurance. The other may find it hard to express love.
One of you may openly develop depression and anxiety. The other may hide their true feelings.
One of you may laugh. The other may cry.

From these examples it’s easy to see how a couple can so easily find a void in their relationship as they try to find a place for their grief.  These don’t all apply to us but elements of each do, and I’ve heard from others who have found the same.

The strain is immense yes, but that doesn’t mean it’s the end.

The hardest thing for me in the first couple of years was not that I’d fallen out of love or that any of the things above were too much to bear. It was that my own grief was so consuming that I wanted to leave to find the space to ‘be with it’. I had, I suppose, several ‘fight or flight’ moments and the grief was constantly telling me to run!

I could be overwhelmed by the smallest things – sorting a pile of washing – and just want to run away from it all, because I didn’t want to sort washing for us all who were alive, I wanted to sit in a quiet room and grieve for my daughter. I wanted to cry and wail, curl into a ball, not pretend I was okay and go through the motions of life.

I wanted to start afresh. Where I wouldn’t have to look into my husband’s eyes and know that he is hurting too, where I wouldn’t see Abi’s birth, life and death in his face every day, where I could give myself new things to look at that would ‘mask’ the painful memories. At times, this feeling was suffocating but I pushed through it.

I knew that, for me, leaving was not a healthy option. I ultimately loved my husband, and we had other children, but my grief was constantly whispering in my ear that I would be better off letting it run my life. I could leave if I wanted but I knew I’d be left alone allowing the grief to eat away at me, it would always be the reason why, it would redefine my whole life. And it was that which stopped me, in those deeply depressed moments, silently crying over the washing basket as I wrestled with myself.

My marriage has survived so far and we are together because we want to be, we love each other, we desire each other, we treasure our family. The grief has found a place and we seem to have adjusted, but I always have a nagging doubt in my mind as I hear of ‘delayed reactions’ where one of the parents has a crisis later on in life.

As you know, we have added two more children to our home, both so quickly after losing Abi, we barely had time to breathe! Yes, it’s been the most wonderful blessing but we have also had to find a place for our marriage amidst the sleepless nights, weary bodies and minds and fractured nerves! Having another baby doesn’t ‘solve’ any problems if you’ve lost other children, if anything it creates new ones, but it’s still such an amazing part of our life and I know that God has turned our pain into a blessing.

There’s no denying that while we try to be fair, we treat our younger two differently to how we treated our first three when they were younger. There’s more love, fewer rules! We don’t love them more than the others, just differently. Our parenting style has shifted, we still have the same principles of parenting, it’s just we perhaps give them more of our time and are more patient and forgiving. We don’t fret about the hours of sleep lost, and now treasure the little ones running into our bed in the middle of the night for a cuddle. We’re of course also experienced now we are older and know what we’re doing. My husband is an amazing father, he always has been but he takes an even more active role in parenting now and helping around the house. It’s things like this that help keep a marriage together when you’re juggling so much.

The statistic that most marriages break up after a loss hasn’t actually been proven, yet it still remains something people believe. Of course, some marriages do fall apart but the death is likely to be one of a number of factors that decide the relationship is over.

Like any difficult time, in a marriage it’s important to ride out the waves together, even if that means you’re not on the same wave, as you’ll both be together when the waters have stilled again. I don’t know what tomorrow will bring, or even today, and I don’t know how life will affect us, but I think I know now that we will always try to stay together, and I feel blessed we have made it this far!

 

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My 9-year-old son came home from school with his ‘life quote’, which sums it up very well. He explained that no matter if your car gets dented or broken on the journey (if someone dies), you can still rebuild your car so that you can carry on.

 

Would you like to donate to help me publish a children’s book about dying?
Just £1 will make a big difference to help me get the book out there to comfort children like ours who have been bereaved.

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